The Physical Lincoln Complete by John G. Sotos

versus 7.5 lbs.).įoreheads are described as disproportionately large, rounded and may be pinched at the temples. The Newborn PeriodĮxamining the birth records of children with Sotos syndrome often reveals large head circumference (14.5″ versus average 13.5″), body length (23″ versus average 20″) and birth weight (9 lbs. We thank them for their contribution to this effort and for their investment in the success of the Sotos Syndrome Support Association. Throughout the text are insights, comments and photographs from families whose children have Sotos syndrome. In this handbook, the characteristics of Sotos syndrome are reviewed, the developmental pattern outlined, and suggestions made about helping the individuals with Sotos syndrome achieve full potential. Sotos syndrome is not a devastating condition, though it raises formidable challenges. Rather, the diagnosis of Sotos syndrome is frequently made months or even years following the birth of a child, after a slow process of wondering whether anything is amiss, listening to vague reassurances or equally vague gloomy projections, cherishing every sign of “normality,” and secretly fearing something devastating is about to happen. Sotos syndrome does not usually follow this pattern. Many genetic conditions are obvious at birth, and a clear-cut diagnosis can be made with specialized laboratory tests. For many individuals, Sotos syndrome primarily alters developmental timing despite early trends, the adult with Sotos syndrome may be within the normal range of height and intellect. Muscle tone improves steadily and with it comes better speech. Fortunately, in late childhood the gap begins to close. Muscle tone is low, and speech is markedly impaired.Ī child who looks older and acts younger is at risk for poor self-esteem, strained peer and family relationships, and problems in school.

Ironically, this rapid physical development is often accompanied by delayed motor, cognitive and social development. Because of the distinctive head shape and size, Sotos syndrome is sometimes called cerebral gigantism. Children with Sotos syndrome are often taller, heavier, and have larger heads than their peers. Sotos syndrome is a genetic condition causing physical overgrowth during the first years of life. We encourage you to order copies not only for yourself, but also as an information source for your school, your library, your relatives, and even your doctor.)

(This handbook is an excellent (really excellent!!!) resource for professionals and parents, alike. Excerpts from: “Sotos Syndrome: A Handbook for Families”

The Physical Lincoln Complete by John G. Sotos